To purchase a ticket for the fashion show please click on the button below.  Upon receiving this information, PayPal will promplty email an acknowledgement of your ticket purchase.  SCID, Angels for Life will send you your ticket via email following your purchase.

SCID, Angels for Life Foundation is a 501(c)(3) non profit organization and donations are tax deductible to the maximum extent allowed by IRS regulations. Our Federal Tax ID number is 26-2301379. Please consult your tax advisor to determine the tax deductibility of your donation.

For futher information please read the following press release - http://www.prnewswire.com/news-releases/immune-deficiency-foundation-praises-achdnc-recommendation-for-scid-screening-in-newborns-82610877.html

A second article can be found at – http://newswire.ascribe.org/cgi-bin/behold.pl?ascribeid=20100127.072056&time=08%2016%20PST&year=2010&public=0

The 2nd Annual ^Brandon^ & Taylor Dahley ”REACHING FOR A CURE” Charity Golf Tournament

Tournament Registration Form

Players Name:________________________________________________

                             ________________________________________________

                             ________________________________________________

                            ________________________________________________

Phone/Email Address:_________________________________________

                          _________________________________________________

                          _________________________________________________

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Cost is $100/player or $400/team of four

*Make checks payable to:  SCID, Angels for Life Foundation

Federal ID# 26-2301379

Check #___________   Check Total:__________

Please mail checks to: 

Or to pay by Credit Card please click the PayPal link below and fax or mail your registration form.  Fax to 863-647-9537

  To Pay for Sponsorships please mail your check to the above address or to pay by credit card click on the PayPal link below.  Remember to include a description of which Sponsorship you are choosing.

HOTEL ACCOMODATIONS

For those of you who will need hotel accomodations, the Hampton Inn and Suites has reserved a block of rooms at a rate of just $99/night plus 12% tax.  To reserve a room please call 863-603-7600 and tell them you’re with SCID Angels for Life Foundation and they’ll be sure to give you the discounted rate.  There’s a block of 10 rooms reserved for this event so please be sure to call and make your reservations now.  Reservations must be received by February 24, 2010.  Thereafter, reservations will be taken on a space and rate availabe basis only.

Hampton Inn & Suites Lakeland South- Polk Parkway

3630 Lakeside Village Blvd.

Lakeland, FL  33803

(863)603-7600

 

Taylor and his family

Last year we raised a lot of money for SCID, Angels for Life Foundation and HAD A LOT OF FUN! Registration for this years event is  now open.  Please REGISTER below!  The money raised last year has gone to help sponsor SCID families attend local and national conferences (for some this was their first time meeting another family with SCID), and the remainder has gone to the efforts of Newborn Screening for SCID.  Awareness and education are extremely important issues and we need your help!

Everything is ready at The Club at Eaglebrooke in Lakeland, FL.  There’s only one thing missing…YOU!

Enjoy the full tournament experience at The Club at Eaglebrooke for $100 per person, registration begins NOW.

Game Day Activities

• 11:30 a.m. Check-in
• 12:30 p.m. Boxed lunches served
• 1:00p.m. Shotgun start
• Prizes for:  Men’s and Ladies Longest Drive,  Closest to the Pin, Putting Contest and more
• Watch for 14 year old Taylor to be selling 50/50 Raffle Tickets
• 5:30 p.m. cocktails and heavy hors’doeuvres served during our reception and award ceremony followed by presentations, auctions and raffles

2010 SPONSORSHIP OPPORTUNITIES

Tournament Sponsor – $5,000  One (1) Tournament Sponsorship is available

Benefits for Tournament Sponsor-

• Top billing on all tournament signage
• CEO or company representative to address attendees at start of day and give 60-second “commercial” about company
• Banner placement at the Clubhouse the day of the event (company to provide banner)
• Opportunity to give away promotional items during event
• Display table available by registration

Lunch Sponsor – $2,000 -Talecris Biotherapeutics

Benefits for Lunch Sponsor-

• Company’s name listed on tournament signage
• CEO or company representative to distribute lunches to golfers
• Banner placement at the reception day of event (company to provide banner)
• Opportunity to distribute promotional items
• Display table available at reception

Reception Sponsor – $2,000 – Baxter Healthcare

Benefits for Reception Sponsor-

• Company’s name listed on tournament signage
• CEO or company representative to welcome attendees at reception event
• Banner placement at the reception day of event (company to provide banner)
• Opportunity to distribute promotional items
• Display table available at reception

Golf Cart Sponsor – 1,500  – CSL Behring

Benefits for Golf Cart Sponsor-

• Company’s name/logo on signage on each golf cart

Closets to Pin Sponsor - $250  One (2) Closest to Pin Sponsorships remain available – sponsors must provide prize -

BioLife Plasma Services

NuFactor Specialty Pharmacy

 Wells Fargo Advisors

Benefits for Closest to Pin Sponsor-

• Company’s name/logo on signage at the designated hole
• Opportunity for CEO or company representative to announce winner at reception

Longest Drive Sponsor - $250 One  (1) Longest Drive Sponsorship remains available – sponsor must provide prize

Wells Fargo Advisors

Benefits for Longest Drive Sponsor-

• Company’s name/logo on signage at the designated hole
• Opportunity for CEO or company representative to announce winner at reception

Par (Hole) Sponsors at $100 Multiple Par Sponsorships are available

Benefits for Par Sponsors-

• Company’s name/logo on signage at your designated hole

Prize Sponsors – In Kind Donation Multiple Sponsorships are available

Benefits for Prize Sponsors-

• A listing on the tournaments “Prize Sponsors” page during reception

Timing   All sponsorship opportunities are on a first come first committed basis.  We ask that sponsorships and donations be committed no later than March 6th so that we may include your company name in all appropriate recognition and promotion.  Artwork of your company name and logo is required by March 6, 2010.  Please send in jpeg format to Heather@SCIDangelsforlife.com Promotion of your participation will begin as soon as we receive your artwork.

SCID, Angels for Life Foundation reserves the right to approve all sponsorships and donations.

REGISTER NOW ONLINE by going to the “Registration” page or by clicking here www.angels.scid.net/2010/01/registration-for-golf-tournament

 To have a registration form emailed to you instead please contact Heather Smith at Heather@scidangelsforlife.com and ask for a registration form.

HOTEL ACCOMODATIONS

For those of you who will need hotel accomodations, the Hampton Inn and Suites has reserved a block of rooms at a rate of just $99/night plus 12% tax.  To reserve a room please call 863-603-7600 and tell them you’re with SCID Angels for Life Foundation and they’ll be sure to give you the discounted rate.  There’s a block of 10 rooms reserved for this event so please be sure to call and make your reservations now.  Reservations must be received by February 24, 2010.  Thereafter, reservations will be taken on a space and rate availabe basis only.

Barb was at the meeting today where the advisory committee voted on whether or not to add SCID to the panel for newborn screening. Unfortunatley, they voted NO. However, Barb did say that we shouldn’t give up hope. “For now they voted against recommending SCID to the Secretary for newborn screening. BUT, they want to see if certain criteria can be met and then they will revote. A group of committee members are supposed to work out the criteria tonight and tell the committee in the morning exactly what they want to see. One thing they want to see is if either the Wisconsin or Mass pilot programs find a SCID baby. Neither one has, although they’ve found 2 DiGeorge babies that wouldn’t have been picked up yet and Wisconsin found a baby with a neutraphil defect that is so rare that it’s only the 2nd case diagnosed. They reported that the baby has now had a successful transplant. That child wouldn’t have lived if it were not for the Wisconsin pilot study.”

I’m so sorry that I don’t have better news to report for now.  Hopefully the revote will come back as a YES.  Like my husband John said, “How can anyone in their right mind vote No on this?”

For more information on the Wisconsin Newborn Screening for SCID pilot program, please contact webmaster@mail.slh.wisc.edu 

Recently, on November 24, 2008 the Advisory Committee on Heritable Disorders in Newborns and Children held their sixteenth meeting.  This meeting was done via WEBCAST and I had the opportunity to speak to the committee during the Public Comments section.  At that time I read our personal story and experience with SCID and shared with the committee why I feel this inheritable disease should be added to the committees recommended uniform newborn screening panel.

The committee did not make a decision during the last meeting and plans to have further discussions along with a vote during their February 26th & 27th meetings in Bethesda, MD.  Please check back for further information regarding this meeting and what you can do to help! If you are willing to share your story with SCID please contact me at:  Heather@scidangelsforlife.com

The Brandon and Taylor Dahley “REACHING FOR A CURE” Charity Golf Tournament held on March 28, 2009 was a HUGE success! We had 40 golfers register (less than I had hoped for but it was spring break weekend and also with the state the economy is in, we feel blessed) and everyone had a wonderful time. We served a box lunch before golf and had an awards ceremony with dinner after the tournament was finished. During the ceremony John and I spoke on our experience with SCID and why we feel newborn screening is so important. We received a standing ovation at the end…that was truly amazing! We plan to make this an annual event and we already have people signing up for next year’s tournament.  

So far year to date SCID, Angels for Life Foundation has raised $14,200 in donations! That is our NET value and includes donations from PayPayl (through our website), Facebook and of course the net proceeds from the golf tournament in March. I’m so proud of this accomplishment and want to thank each and every one of you who have contributed to our cause.

Although the golf tournament is over, the fundraising efforts continue on. So does the need for newborn Screening for SCID, education and awareness of this “rarely diagnosed” disease. SCID, Angels for Life Foundation is a 501 (C)(3) and your donation is tax deductible. We realize everyone’s financial circumstances are different and we hope you will donate an amount that is financially comfortable for you. If you haven’t given already, please consider giving now, every dollar counts. Thank you!!!

Here are the results from the tournament:

Smith, John

Dahley, Taylor                68

Hayes, George

Klein, Mark

Johnston, Cal

Johnston, Pat                 76

Dean, Judy

Tubbs, Doris

Davis,Johnny                                                                                                            

Evans, Rob                    63

Brunson, Jim

Jefferson, Jack

Singh, Hardeep

Singh, David                70

Chen, Algonso

Scott, Carl

Taylor Dahley and David Singh (both boys have X-SCID)

Jones, Dave                  59

Tillis, John

Anderson, Larry

Gard, Scott

Bolding, Hank              60

Bolding, Justin

Towne, Robert

Ed Weber, Mark VanDyke, Jack Buescher, Dan Johnston

Weber, Ed                    71

Buescher, Jack

Williams, Jessica

Johnston, Dan

Wray, Jeff                    65

Jaggi, Doug

Mitstiffer, Bud

Andra Grimes, Heather Smith and Scott Grimes

Grimes, Andra             70

Crowmartie, Matt

Rushing, Michael

Manning, Jim

Stogner, Roy                70

Tims, Willie

Hanagan, Bob                                                              

Reception after tournament

Golf Tournament Details and Brochure